Stiff-person syndrome: the rare disease affecting Céline Dion

Dion shares shocking new details of her illness in interview preview with Hoda Kotb

Stars Insider

11/06/24 | StarsInsider


The revelation that Canadian singer Céline Dion was diagnosed with stiff-person syndrome (SPS) has placed this rare neurological disorder under the public spotlight. Little is known about the disease, which affects just one or two out of every million people. Its symptoms are painful and debilitating, and while treatment is available to lessen the impact SPS has on the mind and body, there is currently no cure for this condition that sees stiffening in the torso and limbs, along with episodes of severe muscle spasms. 

The singer has kept her battle with the disease very private in the year and a half since she revealed her diagnosis, but she will soon share it with the world in intimate detail. In May, she announced an upcoming documentary titled 'I Am: Céline Dion' which follows her journey with the illness. A preview of an interview she did with Today's Hoda Kotb showed Kotb saying, "Céline Dion at some point — she is now much better — but at some point she almost died." She continues, "It was so jarring to me and moving — I couldn't believe what they were able to capture in that documentary." Another recent preview showed Dion in conversation with Kotb, explaining how severe and long-lasting her muscle spasms have been. She explained that sometimes they target her throat, constricting her voice, while at other times they affect her limbs or abdomen. Dion revealed that she even experienced abdominal spasms so severe that they broke her ribs. The full interview airs on NBC at 10/9c on June 11.

To learn more about Dion's journey and the disease she suffers from, click through the gallery.

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