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© Getty Images
0 / 29 Fotos
An uncommon type of dementia
- Frontotemporal dementia (FTD) is an uncommon type of dementia that causes problems with personality, behavior, and language. It tends to develop slowly, and gets gradually worse over several years.
© Getty Images
1 / 29 Fotos
Causes of frontotemporal dementia
- FTD is caused by clumps of abnormal protein forming inside brain cells. These are believed to damage the cells and stop them from working properly.
© Shutterstock
2 / 29 Fotos
Why it happens
- In addition, certain substances accumulate in the brain. But it's still not fully understood why this happens.
© Shutterstock
3 / 29 Fotos
A genetic link
- However, there are genetic mutations that have been linked to FTD. Around one in eight people who get FTD will have relatives who were also affected by the condition.
© Shutterstock
4 / 29 Fotos
More research is needed
- Researchers have confirmed shared genetics and molecular pathways between FTD and amyotrophic lateral sclerosis (ALS). However, more research needs to be done to understand the connection and potential treatments.
© Shutterstock
5 / 29 Fotos
Symptoms of frontotemporal dementia
- Signs and symptoms of frontotemporal dementia can be different for each person. Clusters of symptom types tend to occur together, and people may have more than one cluster of symptom types.
© Shutterstock
6 / 29 Fotos
Personality and behavior changes
- The most common signs of FTD involve extreme changes in behavior and personality. These include acting inappropriately, loss of empathy, neglecting personal hygiene, overeating, and loss of motivation.
© Shutterstock
7 / 29 Fotos
Language problems
- Some subtypes of FTD lead to language problems or impairment, or loss of speech. This includes speaking slowly and struggling to say the right sounds when saying a word.
© Shutterstock
8 / 29 Fotos
Problems with mental abilities
- People with FTD can get easily distracted, and struggle with planning and organization.
© Shutterstock
9 / 29 Fotos
Memory problems
- Memory problems tend to only occur later on, unlike more common forms of dementia, such as Alzheimer's disease.
© Shutterstock
10 / 29 Fotos
Motor disorders
- There may also be physical problems, such as slow or stiff movements, muscle weakness, or difficulty swallowing. During later stages of FTD, one may even lose bladder or bowel control.
© Shutterstock
11 / 29 Fotos
Help might be needed
- These problems can make daily activities difficult, and the person may eventually be unable to look after themselves.
© Shutterstock
12 / 29 Fotos
Getting medical advice
- See a medical professional if you think you have early symptoms of dementia. If you're worried about someone else, encourage them to make an appointment.
© Shutterstock
13 / 29 Fotos
A medical professional will do simple checks
- The medical professional will do some simple checks to try to find the cause of your symptoms. If needed, they might refer you to a memory clinic or another specialist for further tests.
© Shutterstock
14 / 29 Fotos
Tests for frontotemporal dementia
- There isn't a single test for frontotemporal dementia. However, there are some ways to make a diagnosis.
© Shutterstock
15 / 29 Fotos
An assessment of symptoms
- Normally, it's helpful to have somebody who knows the person well enough to give an account of their symptoms. Especially if someone with FTD isn't aware of their own behavioral changes.
© Shutterstock
16 / 29 Fotos
An assessment of mental abilities
- This will usually involve a number of tasks and questions.
© Shutterstock
17 / 29 Fotos
Blood tests
- Blood tests can help rule out conditions with similar symptoms.
© Shutterstock
18 / 29 Fotos
Brain scans
- Brain scans such as an MRI scan, a CT scan, or a PET scan can detect signs of dementia and help identify which parts of the brain are most affected. They can also help rule out other issues with the brain.
© Shutterstock
19 / 29 Fotos
Lumbar puncture
- A lumbar puncture, also known as a spinal tap, is a medical procedure in which a needle is inserted into the spinal canal. Its purpose is to extract fluid that surrounds and supports the brain and spine, which may be useful to rule out Alzheimer's disease.
© Shutterstock
20 / 29 Fotos
Treatments for frontotemporal dementia
- There's currently no cure for FTD or any treatment that will slow it down. However, there are ways to help control some of the symptoms.
© Shutterstock
21 / 29 Fotos
Therapies
- Physiotherapy, occupational therapy, and speech therapy can help for problems with movement, everyday tasks, and communication.
© Shutterstock
22 / 29 Fotos
Medication
- There is medication available to control some of the behavioral problems associated with FTD.
© Shutterstock
23 / 29 Fotos
Activities for dementia
- Activities for dementia, such as memory cafés, are great for people with memory problems and their carers to get support and advice.
© Shutterstock
24 / 29 Fotos
Support groups
- Support groups are an ideal place to get tips on managing symptoms from dementia experts and people living with FTD and their families.
© Shutterstock
25 / 29 Fotos
Outlook for frontotemporal dementia
- The progression of FTD varies from person to person and is very difficult to predict. People with the condition can get socially isolated as the illness progresses. Home-based help will usually be needed at some point, and some people will eventually need to go to a nursing home.
© Shutterstock
26 / 29 Fotos
Average survival time
- The average survival time after symptoms start is around eight to 10 years. But this varies, and some people live much longer than this.
© Shutterstock
27 / 29 Fotos
For family members
- If your loved one has been diagnosed with FTD, remember that you are not alone. There are many support groups and resources that can provide advice for the family as well. Sources: (Associated Press) (NHS) (Mayo Clinic)
© Shutterstock
28 / 29 Fotos
© Getty Images
0 / 29 Fotos
An uncommon type of dementia
- Frontotemporal dementia (FTD) is an uncommon type of dementia that causes problems with personality, behavior, and language. It tends to develop slowly, and gets gradually worse over several years.
© Getty Images
1 / 29 Fotos
Causes of frontotemporal dementia
- FTD is caused by clumps of abnormal protein forming inside brain cells. These are believed to damage the cells and stop them from working properly.
© Shutterstock
2 / 29 Fotos
Why it happens
- In addition, certain substances accumulate in the brain. But it's still not fully understood why this happens.
© Shutterstock
3 / 29 Fotos
A genetic link
- However, there are genetic mutations that have been linked to FTD. Around one in eight people who get FTD will have relatives who were also affected by the condition.
© Shutterstock
4 / 29 Fotos
More research is needed
- Researchers have confirmed shared genetics and molecular pathways between FTD and amyotrophic lateral sclerosis (ALS). However, more research needs to be done to understand the connection and potential treatments.
© Shutterstock
5 / 29 Fotos
Symptoms of frontotemporal dementia
- Signs and symptoms of frontotemporal dementia can be different for each person. Clusters of symptom types tend to occur together, and people may have more than one cluster of symptom types.
© Shutterstock
6 / 29 Fotos
Personality and behavior changes
- The most common signs of FTD involve extreme changes in behavior and personality. These include acting inappropriately, loss of empathy, neglecting personal hygiene, overeating, and loss of motivation.
© Shutterstock
7 / 29 Fotos
Language problems
- Some subtypes of FTD lead to language problems or impairment, or loss of speech. This includes speaking slowly and struggling to say the right sounds when saying a word.
© Shutterstock
8 / 29 Fotos
Problems with mental abilities
- People with FTD can get easily distracted, and struggle with planning and organization.
© Shutterstock
9 / 29 Fotos
Memory problems
- Memory problems tend to only occur later on, unlike more common forms of dementia, such as Alzheimer's disease.
© Shutterstock
10 / 29 Fotos
Motor disorders
- There may also be physical problems, such as slow or stiff movements, muscle weakness, or difficulty swallowing. During later stages of FTD, one may even lose bladder or bowel control.
© Shutterstock
11 / 29 Fotos
Help might be needed
- These problems can make daily activities difficult, and the person may eventually be unable to look after themselves.
© Shutterstock
12 / 29 Fotos
Getting medical advice
- See a medical professional if you think you have early symptoms of dementia. If you're worried about someone else, encourage them to make an appointment.
© Shutterstock
13 / 29 Fotos
A medical professional will do simple checks
- The medical professional will do some simple checks to try to find the cause of your symptoms. If needed, they might refer you to a memory clinic or another specialist for further tests.
© Shutterstock
14 / 29 Fotos
Tests for frontotemporal dementia
- There isn't a single test for frontotemporal dementia. However, there are some ways to make a diagnosis.
© Shutterstock
15 / 29 Fotos
An assessment of symptoms
- Normally, it's helpful to have somebody who knows the person well enough to give an account of their symptoms. Especially if someone with FTD isn't aware of their own behavioral changes.
© Shutterstock
16 / 29 Fotos
An assessment of mental abilities
- This will usually involve a number of tasks and questions.
© Shutterstock
17 / 29 Fotos
Blood tests
- Blood tests can help rule out conditions with similar symptoms.
© Shutterstock
18 / 29 Fotos
Brain scans
- Brain scans such as an MRI scan, a CT scan, or a PET scan can detect signs of dementia and help identify which parts of the brain are most affected. They can also help rule out other issues with the brain.
© Shutterstock
19 / 29 Fotos
Lumbar puncture
- A lumbar puncture, also known as a spinal tap, is a medical procedure in which a needle is inserted into the spinal canal. Its purpose is to extract fluid that surrounds and supports the brain and spine, which may be useful to rule out Alzheimer's disease.
© Shutterstock
20 / 29 Fotos
Treatments for frontotemporal dementia
- There's currently no cure for FTD or any treatment that will slow it down. However, there are ways to help control some of the symptoms.
© Shutterstock
21 / 29 Fotos
Therapies
- Physiotherapy, occupational therapy, and speech therapy can help for problems with movement, everyday tasks, and communication.
© Shutterstock
22 / 29 Fotos
Medication
- There is medication available to control some of the behavioral problems associated with FTD.
© Shutterstock
23 / 29 Fotos
Activities for dementia
- Activities for dementia, such as memory cafés, are great for people with memory problems and their carers to get support and advice.
© Shutterstock
24 / 29 Fotos
Support groups
- Support groups are an ideal place to get tips on managing symptoms from dementia experts and people living with FTD and their families.
© Shutterstock
25 / 29 Fotos
Outlook for frontotemporal dementia
- The progression of FTD varies from person to person and is very difficult to predict. People with the condition can get socially isolated as the illness progresses. Home-based help will usually be needed at some point, and some people will eventually need to go to a nursing home.
© Shutterstock
26 / 29 Fotos
Average survival time
- The average survival time after symptoms start is around eight to 10 years. But this varies, and some people live much longer than this.
© Shutterstock
27 / 29 Fotos
For family members
- If your loved one has been diagnosed with FTD, remember that you are not alone. There are many support groups and resources that can provide advice for the family as well. Sources: (Associated Press) (NHS) (Mayo Clinic)
© Shutterstock
28 / 29 Fotos
What is frontotemporal dementia, the disorder afflicting Bruce Willis?
Everything you need to know about FTD
© Getty Images
Bruce Willis' family shockingly announced in the spring of 2022 that he was stepping away from acting because he had been diagnosed with aphasia, a disorder that affects the ability to communicate. Sadly, his condition progressed, and in February 2023 his family shared that he had a more specific diagnosis of frontotemporal dementia (FTD).
FTD is an umbrella term for a group of brain disorders that primarily affect the brain's frontal and temporal lobes. These areas of the brain are generally associated with personality, behavior, and language.
Intrigued? Click through the following gallery to find out more about the condition.
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