FOP Awareness Month: what exactly is fibrodysplasia ossificans progressiva?

The disease you didn't know could leave you paralyzed

Stars Insider

16/04/24 | StarsInsider

HEALTH Diseases

Can you imagine a world where you fear your every next step? What if an everyday fall, trip, or slip could mean losing further mobility permanently? FOP, or fibrodysplasia ossificans progressiva, is an ultra-rare, debilitating, and progressive disease that causes bone formation in muscles, tendons, and ligaments. It is also known as the "Stone Man syndrome" due to progressive ossification that restricts movement. But while there is no medical treatment to completely rid one of the disease, there are ways in which you can make your life or the lives of loved ones more manageable.

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